I don’t want to think about how long I have been doing this. A lot longer then planned that is for sure. Within the last 6 months I have scaled back dramatically on treatments for Sophie. I was tired. I have been working from home as a web developer since my husband was laid off. I just couldn’t manage everything and thinking about it logically, I felt like it was time to give myself and Sophie a break, so here is what I changed.
Diet
I dropped the gf/cf diet…gasp I know that is a big one. Sophie had been on the diet for around 2 years and when I first put her on the diet I did see positive changes, like she stopped lining up toys, but after about 1 1/2 years I didn’t see a huge change after slowly taking her off of the diet. I could see some regression when I would add back gluten or casein for a long time, but now I don’t see a difference and the pay off has been worth it. Sophie is now trying all kinds of new foods! Before I could count the foods she would eat on one hand now she is trying almost everything.
Chelation
I now chelate on a different schedule. I had previously chelated on Andrew Cutler’s schedule which includes giving chelation supplements every 3 hours during the day and every 4 during the night. My new schedule is higher doses 3 times a day. I was worried about this one, but after trying it for many rounds now, Sophie seems to do fine with it and it is sooo much easier that I am more consistant with it.
Supplements
I am giving less supplements. I evaluate what I am giving her more closely, not just giving what worked for someone else but I have slowed down and I really look at whether a supplement makes a change in Sophie. Much of this has to do with a lack of extra money to spend. I am very limited now and so I buy what I know she needs and when I try new supplements I am more careful to evaluate them.
The changes I have made may not be for everyone. I would not have given my daughter treatment in this way 2 years ago, but this is what I can manage at this time. This schedule allows me to still pursue what I think is going to be the real cure for Sophie- removing heavy metals from her system and then supporting her system while it recovers.
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4 Comments
Kelly, Having my husband get up at night instead of me only shifts the burden to my husband it doesn’t solved the problem. My family has done more than 40 rounds of chelation with the Cutler protocol it can be very taxing to everyone involved. I am not sure what your experience is but this is not something that I have taken lightly.
I am trying to heal my child, that is my priority. I am very careful not to close my mind to other methods.
Within the autism community there seems to be groups that believe in certain methods and according to them anyone trying anything else is endangering their child. I find this very funny since most of main stream medicine thinks anyone doing biomed is doing that very thing.
Though out my child’s illness I have been told many times that my child can’t be healed at all, that mercury has nothing to do with her problems, that yeast issues are the latest health-nut craze and that the Cutler protocol is the only safe protocol to use. I refuse to be pigeon holed into anything.
Many parents have successfully treated their children in this manner and after I have now done 13 rounds of this method, starting very slowly while observing my child, I have found it safe and effective.
I am only sharing my experience.
God bless,
Sarah
I’m sorry — I totally understand your points. It just seemed to me like you were seeing more improvements using the “C” protocol, and just thought that perhaps he could help you out or take turns.
I’m actually just about to start the protocol, so I’m definitely in no boat to make judgements. I’ve had CFS for 11 years, am pretty weakened by it, and live alone — so I’ll find out pretty soon for myself how, or if, I can manage Cutler’s protocol. The main thing I’m worried about is moving mercury from my brain (if it’s there) and out, then back into it if I don’t take the ALA often enough…
???
Best regards,
Kelly
Comment by kelly on July 13th, 2009 @ 11:51 amhey! i am so behind on my blogs! good for you and sometimes financial/time set backs force us into really figuring out what’s best for…us!! i am proud that you are so willing to not trust in a method rather in Him…He will guide you!! you have encouraged me…we, too, have let supplements go a bit due to money…i am back on board. i am actually studying about antiviral/antifungal treatments! i am pretty sure that is the heart of j-bobs problem!
Comment by heather on August 13th, 2009 @ 9:42 pmLine and paragraph breaks automatic, e-mail address never displayed, HTML allowed: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>
With all due respect, I would ask your husband to get up during the night and try the Cutler protocol. It is a pain, and can be tiring, but isn’t that best for your daughter? I don’t know the answer…I’m just asking…
Best of luck!
Comment by Kelly on July 12th, 2009 @ 3:55 pm